Showing posts with label PCDH19 epilepsy. Show all posts
Showing posts with label PCDH19 epilepsy. Show all posts

Monday 19 February 2018

what is PCDH19 epilepsy



The 38-year-old mother said she had found a doctor
 in Holland who was willing to prescribe cannabis oil
 and hence they shifted there in September 2017.
"Nothing short of a miracle," Deacon said as the
 medication brought the boy's seizures down to
 about one a month.
Deacon, a hairdresser, said as they were running
 out of money, they had to shift back to Britain
. However, after shifting, the medication could 
not be continued as the drug is illegal in the country.
Deacon said: "We have proved this treatment 
is successful for him. This is a child's life and health. 
We need this treatment desperately."
Baroness Meacher, chair of the All-Party Parliamentary Group for Drugs Reform
, told the Daily Mail: "It is scandalous that a six-year-old boy is prevented from having the
 medicine that can transform 
his life."
However, the Home Office on Saturday night (17 February) said it would not issue a licence for
 the personal consumption of a "Schedule 1 drug" such as cannabis.
Deacon has now created a Facebook page called as "Alfie's Hope" to help support
 her son's medication.

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