Saturday, 11 April 2015

Speaking exclusively to the BBC, Dr Peter Wilson, paediatric intensive care consultant at Southampton General Hospital,

Ashya King: Southampton hospital staff criticise parents

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Media captionAshya King was taken out of hospital by his parents to receive proton beam therapy abroad
Doctors and nurses who treated cancer patient Ashya King have criticised his parents while speaking out for the first time in a BBC documentary.
Ashya was being treated in hospital in Southampton when his parents took him abroad without telling staff last year.
They ignored medical advice and took him to Prague for proton beam therapy.
It was later revealed Ashya did not receive subsequent chemotherapy in Prague, a move the team in Southampton say could jeopardise his recovery.
Speaking exclusively to the BBC, Dr Peter Wilson, paediatric intensive care consultant at Southampton General Hospital, said: "We are unsure as to exactly what treatment he is receiving but what we do know is... every month that goes by that he's not getting chemotherapy, his outcome worsens.
Dr Peter Wilson
Dr Peter Wilson and other members of the medical team received hate mail
"There are experts in the country that have already quoted figures of halving survival - so survival going from 80% to 40% or 50%, which is quite dramatic."
The Kings' version of events last year sparked a public outcry and staff members in Southampton said they received angry emails, letters and phone calls which, at one stage, forced the hospital to shut its switchboard.
The King family, who in March said five-year-old Ashya was now cancer free, declined to be interviewed as part of the BBC programme.
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Has Ashya been cured?

In March, four months after the proton treatment ended, Brett King told a national newspaper a recent scan showed "no evidence" of the tumour.
But cancer experts have told the BBC although it appears Ashya is in remission it is far too early to say he has been completely cured.
Oncology specialist Professor Karol Sikora said: "Ashya is not completely out of the woods yet, but 78% of children with this type of rare cancer actually survive and are cured.
"The fact he is disease free at this point is great, but it doesn't mean he is cured yet."
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The breakdown in the relationship between Brett King and the hospital stemmed from his belief that Ashya should not receive radiotherapy and chemotherapy following surgery to remove a brain tumour.
Mr King claimed in a YouTube video that staff threatened him with a court order if he refused Ashya's treatment, something the hospital has denied.
He told journalists in Spain after his arrest: "They were going to kill him in England or turn him into a vegetable."
YouTube video still
Brett King made accusations against the hospital in a YouTube video
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Key events

  • Ashya had surgery for a medulloblastoma brain tumour at Southampton General Hospital in July 2014
  • His parents, Brett and Naghemeh, removed him from the hospital on 28 August and sparked a manhunt when they travelled to Spain
  • They were arrested but later released and Ashya was flown to Prague, Czech Republic, for proton beam treatment
  • He had six weeks of proton beam therapy, which cost between £60,000 and £65,000, according to the treatment centre, and was paid for by the NHS
  • Ashya returned to hospital in Spain
  • In March, Brett King announced his son was free of cancer
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Through the media, the King family raised tens of thousands of pounds for Ashya's treatment before the NHS agreed to pay for proton therapy in Prague.
Dr Nicky Thorp, of the Children's Cancer and Leukaemia Group of paediatricians, said: "We were dismayed, but on reflection I can see why NHS England agreed to fund that child's case. The child was there, the child needed radiotherapy.
"The use of protons does not improve cure rates of tumours... and it saddens me to see the way the truth can be twisted and misunderstood."
Twitter abuse
Southampton General Hospital received abuse on social media
In Prague, Ashya's parents refused the chemotherapy, which had been recommended by doctors and ordered by the High Court.
But in March, four months after the proton treatment ended, Mr King said his son was cancer free.
Paediatric oncology consultant Dr Ramya Ramanujachar, who was involved in Ashya's treatment, warned the case could set a worrying precedent.
Dr Ramya Ramanujachar
Dr Ramya Ramanujachar accused the Kings of "dictating" their son's treatment
She said: "I don't think the parents can look after their own child with a brain tumour and be not only the carers but also the professionals directing, managing and dictating their child's treatment."
Dr Wilson said the case had led to an "impossible situation" for clinicians faced with families in the same situation.
"That is deeply unfair when the NHS is always supposed to be about equal healthcare for all," he added.
Ashya: The Untold Story is to be broadcast on BBC1 in the South region on Friday at 19:30 BST.

Friday, 3 April 2015

Care system gets 'biggest shake-up in 60 years'

Care system gets 'biggest shake-up in 60 years'

The Care Act 2014 includes rights for those receiving care and those who provide it to their loved ones.
It includes standards for access to services from care homes to help in the home for tasks such as washing and dressing.
Meanwhile, NHS and care budgets are being merged in Scotland.
The Public Bodies (Joint Working) Act has been described as the most substantial reform north of the border for a generation.
It effectively forces councils and the NHS to work together to provide more streamlined services.
That aim is also a major topic of debate in England in the election campaign with the Conservatives, Labour, Liberal Democrats, UKIP and Greens all having plans for greater integration.
But the changes coming into force in England on Wednesday apply only to the care system for older people and younger adults with disabilities.
Four major changes are being introduced:
  • The creation of national eligibility criteria establishing for the first time when someone should be entitled to help - to date, it has been up to councils to set their own criteria
  • A duty on councils to offer schemes by which those who need to pay for residential care can get a loan from their local council, which is then paid back from their estate after death
  • Giving carers for the first time the same right to assessment and support as the people they care for; before, they had to provide "substantial care on a regular basis" to get an assessment
  • Those who pay for care themselves will be entitled to go to councils to get advice and information about the care system.
To help protect people's assets, a cap on care costs they have to pay for - set at £72,000 for the over-65s - will kick in from April next year. How the cap works for younger people has still to be finalised.
Today's changes, however, still mark a major milestone in care services, which experts say have hardly changed since the current system was created along with the NHS after the Second World War.
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BBC Cost of Care project

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The BBC has launched an online guide to the care system for the over-65s. The "care calculator" covers residential care and the support provided in people's own homes, for tasks such as washing and dressing.
Users can submit their postcode and find out how much each service costs where they live in the UK.
There is also a dedicated BBC Cost of Care website, with news stories, analysis and video.
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David Pearson, president of the Association of Directors of Adult Social Services, said the changes were "probably the most significant development" since 1948.
But he said there were still issues to resolve on the underfunding of the system. Unlike the NHS, the care system budget has been cut in real terms this Parliament.
Izzi Seccombe, leader of Warwickshire council, who chairs the Local Government Association's Wellbeing Board, agreed with both points.
"Councils simply cannot afford any more financial burdens when social care services are already chronically underfunded," she said.
Janet Morrison, of the charity Independent Age, said the Care Act had the "potential to revolutionise" services.
But she said: "With a rapidly ageing population, we need an honest debate during and after the election about the true costs of care."

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